Jext Availability July 2014

Jext Supply Update

Earlier this year a number of batches of Jext 150mcg and 300mcg were recalled from the Irish market by the manufacturer ALK due to a potential quality defect

1. ALK are pleased to confirm that the quality defect has been successfully addressed and the company have delivered sufficient supplies of both presentations to allow for this stock to be withdrawn from the market place and to meet on-going demand. However the stock used to resupply the market was short dated and this has resulted in inconvenience and in some cases financial impact for patients and their carers.

In order to address this any patients/carers with a Jext® with an expiry of either October or December 2014 should contact ALK’s customer service department by email at

info@uk.alk-abello.com or by calling +44 (0)118 903 7940.

ALK would like to thank patients and carers for their patience in relation to the product recall and the current issue of short dated stock. ALK are in the process of getting Jext® delivered to Ireland with progressively longer shelf life and are extending this with each batch they produce.

1

http://www.imb.ie/EN/News/Precautionary-recall-of-seven-lots-of-Jext-pens-.aspx

AlleRiC Pilot Study

 

We have been asked to pass on thanks to all those who participated in the AlleRiC Study for their generosity in volunteering their time.  The attached 6 page letter provides an overview of what has been found so far, with details of the next step on the last page of the document.

 AlleRiC Pilot Study_AI ACUK Participants Debrief Letter (ADG)

Food Alert – Sulphur Dioxide

Please note that the FSAI have published new food allergen alerts as follows:-
  • Undeclared Sulphur Dioxide in Various Kellys Sausage Roll Products Sold in Aldi (ref. 2014.A04)
 
Undeclared Sulphur Dioxide in McColgans Sausage Rolls
 

Join our Database please

Please note that Anaphylaxis Ireland would encourage all those with severe allergy to sign up to their database, just download and fill in the form here on the website and return to PO Box 542, Ballinlough, Cork as the more numbers we have, the more voice we might have!

Invitation to Safefood’s “Food Allergy and Food Intolerance Network” Meeting

For further information on Safefood’s forthcoming event: ‘Food Allergy Prevalence and Oral immunotherapy’ to be held in Bewley’s Hotel, Dublin Airport on Friday 21st March 2014, click Network meeting Dublin March 2014 

Allergy N I – National Survey for all of Ireland.

Throughout the UK and Ireland there is no National Database for allergies.  Unlike many other diseases where statistics and other information is readily available, it is not so for allergies.  At Allergy N I we feel there is a great need to collate information in order to help us influence food manufacturers throughout Ireland to consider developing or extending, their range of allergen free foods. Due to Data Protection we could not undertake this ourselves but instead have drawn up a National Survey. Click on the link it only takes 5 minutes to complete and a BIG opportunity to win £50.

Spiddal Oscars Fundraiser 2014

Congratulations to  Orla Cusack (mother of an allergic child) and Jenny Gallagher, who together raised nearly €3,000 between Chernobyl Children and Anaphylaxis Ireland in their now “annual” fundraiser !

We are extremely grateful and thank them for all their hard work and effort.  And so in Orla and Jenny’s words……..

Well once again Spiddal Oscars was a huge success!!! Fun and frolics were had by all!!!     If you go onto Facebook and then into the Spiddal Oscars Page there are approx. 150 photos of the night!!!
 
 So it is myself and Jenny’s pleasure to tell you that we raised a total of €1,410 for each Charity.
 
Orla & Jenny
 

AlleRiC Study – Stage 2 – Call for Food Allergic Adult Volunteers

Earlier this year Anaphylaxis Ireland organised some focus groups for people with severe food allergies and for parents of severely allergic children, as the first stage in the AlleRiC (Allergic Reactions in the Community) project.  AlleRiC is part of the 4 year European research programme, iFAAM (Integrated approaches to Food Allergy & Allergy Risk Management).

The main aim of these focus groups was to get information about allergic reactions direct from people (or from parents of children) who had experienced them.  These discussions have now enabled the researchers at Cork and Manchester Universities, who are leading on this part of the research, to create an on-line questionnaire to record reactions.

The AlleRiC team are now looking for help from food allergic adults to ratify the on-line questionnaire (testing each question for sense and readability, for instance).

To help with this important 2nd stage – please click on the newsletter below for information on how to participate via the email link to alleric@ucc.ie

 AlleRiC_Anaphylaxis Ireland_NewsletterNov2013

The 3rd and final stage of this project is to recruit 50 – 100 volunteers (adults with severe food allergies) whose reactions can then be tracked, using this questionnaire, over a period of time. This information will be really important in helping the overall iFAAM programme make progress towards identifying the levels of sensitivity to food allergens in the population.  So in order to give the University research teams the best information possible, we need to make sure that the on-line questionnaire for recording incidences of allergic reactions is as good as it can be.